Brussels: “Policy dialogue with Institutions at the EU Parliament on equitable patient access to advanced therapies across Europe”

24 Ottobre 2022

Hosted by the Member of the European Parliament Tomislav Sokol (EPP group), co-chair of the MEPs Interest Group “European Patients’ Rights and Cross-border Healthcare”, the initiative was organized by Active Citizenship Network, the EU branch of Cittadinanzattiva, with the aim of contributing to providing a multi-stakeholder vision for equitable patient access to ATMPs.

The program

Moderator: Mariam Zaidi, Journalist – EURACTIV

16:00 – 16:20 Welcome address

  • MEP Tomislav Sokol, Group of the European People’s Party (Christian Democrats), co-chair of the MEPs Interest Group “European Patients’ Rights and Cross-border Healthcare” and member of the TRANSFORM MEP Interest Group
  • Mariano Votta, Director – Active Citizenship Network

16:20 – 16:40

Overview
The economic evaluation of Advanced Therapy Medicinal Products (ATMPs): characteristics and reasons for a new economic and accounting approach

  • Mauro Maré, Professor of Public Economics – University of Tuscia and LUISS University

16:40 – 17:40 Panel discussion

  • Paschalia Koufokotsiou, Policy officer – European Commission, DG SANTE – Unit D1: medical products, quality, safety, innovation
  • Sarah Garner, PhD, Senior Policy Advisor Access to Medicines and Health Products – World Health Organization (WHO) Regional Office for Europe
  • Giorgio Alleva, Professor of Statistics – Sapienza University of Rome; Former president – ISTAT (Italian National Institute of Statistics)
  • Androulla Eleftheriou, Executive Director – Thalassemia International Federation; Director – Cyprus WHO Collaborating Centre of the Cyprus Ministry of Health. For a technical issue she couldn’t attend please click here to find her ppt presentation.
  • Jasna Karačić, PhD, President – Croatian association for the promotion of patient’s rights; Head of Health Diplomacy Unit – International Council of The Patient Ombudsman; Health attaché during the Croatian Presidency of the Council of the European Union

17:40 – 17:50 Comments from the floor

17:50 – 18:00 Conclusions

  • Daniele Manca, Member of the Senate of the Italian Republic; Promoter of the Interest Group “Sustainable Innovation in Healthcare”. For a technical issue he couldn’t attend please click here to find his speech.
  • Mariano Votta, Director – Active Citizenship Network
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